Tips and Tricks: Freedom from the chair

Going out in public is difficult for Daniel. He often gets overwhelmed with the people and the noise. When this happens, he tends to shut down and either run or flop down on the ground. In order to combat this, we got him a wheelchair last year. You can read about that in the post Tips and Tricks: Managing Crowds.

This has been an excellent way for us to manage everyday life and still do things the other boys want to do. Yet there are times when the wheelchair limits are ability to do and see things. In these cases, we would divide and conquer.

This method is manageable most of the time. We realized this would be a problem when we planned our vacation to Colorado Springs this year. We wanted to do several things that required Daniel to walk, and neither of us wanted to stay behind. Fortunately, we found Child Harnesses by Elaine, at www.childharness.ca. (This may sound like an commercial, but I love the product that much!)

I was not sure about the harness thing at first. It is a little strange to put your child in a harness. However, it was one of the best purchases we have ever made in terms of improving our quality of life.dscn1352.jpg

The harness is a simple strap setup that goes over the shoulders. There are two straps that wrap around under the arms and across the chest. I spent the extra money and had Elaine sew a handle on the back and put the two handed buckles on the harness. I also ordered two crotch straps and the parent to child tether. All total, with the upgrades, including shipping from Canada, the harness cost me $178.00.

This may seem like a lot, but it is a small price to pay for the piece of mind and the freedom we got. We 20170804_101511.jpgwere able to hike and take the Mollie Kathleen gold mine tour, which took us 1,000 feet underground. Both of these activities would not have been possible without the harness. With the parent to child tether on, Daniel can not get more than two feet from me. When he would try to flop down, instead of me attempting to manhandle him, I could grab the built in handle and lift him up. The combination of the crotch straps and strap under the arms make it uncomfortable enough he does not want to throw himself down. (The handle is not really intended for that purpose, but that is how I do it.)

If you have a child with special needs, or any child for that matter, that is prone to wander, one of Elaine’s harnesses can restore some freedom to life.

Have another way to keep your child safe in public? We would love to hear about it in the comments below. Please share this with other families.

Tips and Tricks: Limiting the Wandering – Part Two

The garage is a big temptation for Super D. I guess I should refine that statement. The tractor in the garage is a big temptation for Super D. He loves tractors. If the garage door is open, he is likely to be sitting on it. It was a great blessing to see him get excited over something until the day he discovered he could open the door to the garage and have access to the tractor anytime he wanted.

His new found “freedom” created new challenges for us. For a while a security chain worked. It was not long before he was tall enough to reach it. The big problem we have is, if I raise the chain up to where he can not reach it, my 10 year old will not be able to reach it either. Super D is almost as tall as he is.

The solution hit me one night when the janitorial closet door closed behind me at work. A storage room autolock knob would allow us to have access to the garage from inside the house while keeping Daniel out. The new knob replaced the existing knob without any modification to the door. We keep the key hanging on a cup hook across from the door. It is within Super D’s reach, but he does not show any interest in it at this point. Even if he did, he does not have the fine motor skills to get the key into the lock.

I also installed one on our downstairs bathroom to keep him from playing in there. The best part, each lock has a number on the package. If you buy locks with the same number, they will be keyed the same. In our case, the bathroom is across from the garage door. One key opens either door. The next door to get one will be the door to the basement.

One caveat, I would not use this method if your garage is one of the main emergency exits in your house. We have two other exits, so there is little concern about lost keys in an emergency situation.

What methods do you use to limit access to areas of your home which could be dangerous to a child with special needs?

Tips and Tricks: Limiting the Wandering – Part One

One of the biggest safety concerns we face with Super D is his wandering. This is a concern with a lot of special needs children, especially those on the spectrum. Controlling the wandering while still providing a safe and pleasant environment is crucial. Yet this is often easier said than done.

Sometimes it takes a little creativity and, in my case, a little redneck ingenuity.

Our first wandering issue we had to handle was at bedtime. All kids like to fight sleep. However, with Super D, fighting sleep means running out of his room. He also wakes up in the night. It is vary rare for him to stay in bed all night long. If he wakes up in the night, he will run the house and possibly the neighborhood. We took a trip to Branson, Missouri, after the baby was born. At one point Super D woke up in the night, went to the kitchen in the condo, got some chips and then turned the tv on.

There are special beds out there which are basically large cribs, but for a 5-year-old who is the size of a 8-year-old and loves to climb, this would not have worked. I thought about turning the door knob around and locking it from the hall. However, I could not stand the idea of the closed room where he couldn’t see us and we couldn’t see him.

20160814_130324My solution, a modified dutch door. For those who may not be familiar with a dutch door, it is two half doors instead of one full door. In our case, I built one which is a little bigger than half out of four 2×4’s, a 2×6 and a piece of drywall left over from a renovation project. I built it large enough to use the existing bottom and middle hinge. That way the original door can be quickly reinstalled. A simple eye bolt holds it closed. Super D can’t climb it, he can see out and we can see him. While it isn’t the best looking door ever, it serves the purpose. In the event he would kick it or throw something at it, the drywall can easily be replaced. If he should fall against it, the drywall will give way and without seriously injuring him. If he was prone to fits or was violent at times, I would replace the drywall with a sheet of plywood.

How do you keep you roaming child in bed at night?

Tips and Tricks

Navigating life with a child with special needs can be a real challenge. There are so many ways to make life easier. Finding those ways can sometimes be difficult. The internet is full of ideas, half of which are sketchy at best.

In an effort to make deciphering the mess of information a little easier, the tips and tricks posts will share things we have tried that worked and some that didn’t. Some of these we have come up with on our own. A large number will have come from our time at the Lee Ann Britain Infant Development Center. I hope it will benefit my readers and make life a little easier.