The last few weeks have been very good for Super D. His personality his back and we are having fewer seizures. Last week he had a major seizure on Monday and then one again on Friday! That is huge for a little boy who typically has one or two major seizures a day. We have a good idea what has brought this about, but more on that another day.
We have stopped the ADD medicine, although not by choice. The insurance will not pay for the extended release medicine the doctor prescribed.
I would be fine with not giving Daniel any more medicine. However, we have a few safety issues.
He does not understand danger. His ability to reason is not what a normal child’s is. The ability to understand cause and effect does not appear to exist. This seems to be particularly need bad when it comes to heat.
Sunday he burnt himself. He reached into the hot oven for a handful of homemade mac and cheese. Now, I don’t blame him, my homemade mac and cheese is good, but not risk bodily harm good! The scariest part of this was his reaction. He did not cry and scream. We did not know he had burnt himself until later when we noticed the blisters.
I hate to put him on more medicine which could destroy his personality again, but I can not have him getting hurt.
We are fairly certain a lot of this behavior is due to the depakote. We will be taking Super D off that medicine in the next month. I am hopeful some of this behavior will stop when it is gone.
In the meantime, we watch him like a hawk and enjoy having Daniel back.
I have seen the burden God has laid on the human race. He has made everything beautiful in its time. He has also set eternity in the human heart; yet no one can fathom what God has done from beginning to end. Ecclesiastes 3:10-11
Life With Super D! 