The time between major seizures has been holding quite steady lately. We routinely make it 3-6 days between major seizures now. This has been a major blessing. However, it is not without some side effects.
As his mind clears up we see Super D get a little more chaotic. I often tell people it is likely scary for him. For us, it is a little unnerving when our mind gets cloudy. For Daniel, he has lived with a cloudy mind for most, if not all, of his life. So now, things are being turned upside down.
He now has to learn how to deal with it.
This clearing has brought on a lot of speech. He is starting to put words together. Just the other day I heard him tell someone “Thank You”. It was amazing!
There is downside to his new found voice.
He has began to scream. Not just any scream. This is a high pitched, ear piercing, blood curdling scream. It is the kind of scream that hits such a high note my brain cuts the sound off. For anyone who has fired a high powered rifle without hearing protection, you know what I am talking about. In the car it is brutal.
It also scares the crap out of bystanders. He almost gave a lady a heart attach Saturday when we were out. You should have seen the cop looking as we walked down the street behind him.
The scream is bothersome, but I will take it any day over no voice at all.
Some of the Pharisees in the crowd said to Jesus, “Teacher, rebuke your disciples!” “I tell you,” he replied, “if they keep quiet, the stones will cry out.” – Luke 19:39-40
Life With Super D! 