After a long few weeks, we have had a bit of a breakthrough. Over the last week, Super D has only had two big seizures! That is huge progress. I wish I could say for sure what it is that caused this good turn.
The biggest win of the last week came on Saturday afternoon. We made the decision to skip Daniel’s ADD medicine. We really did not know what would happen, but we were 
running low, so why not? This simple decision was a huge blessing.
Daniel started the day off a little chaotic. But, that is to be expected without the medicine. The real blessing came later in the day. Josh had a soccer game that afternoon. Daniel does not really enjoy sitting at the games, but this time was different. He was being very silly. He sat in his chair and poked me. Then, when I tickled him, he smiled and even had a little laugh!
Now, that may not seem like such a big deal. For Super D, it is huge. The medicine has destroyed his personality. He rarely smiles and I have not heard him laugh in two months. For a brief time, I had my little boy back.
Of course, the constant attempts to gag himself also returned. So, we went back to the medicine Sunday.
We are in the process of switching the ADD medicine. Hopefully we will be able to control the impulsivity, yet still retain his personality.
Days like Saturday give us hope. They provide a physical reminder that God is good and has not forsaken us. Days like that recharge the batteries, so to speak, making it easier to press on.
One day, we will have him back for good. Until then, we will persevere.
Don’t be deceived, my dear brothers and sisters. Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. He chose to give us birth through the word of truth, that we might be a kind of first fruits of all he created. – James 1:16-18
Life With Super D! 