The last two weeks have been a little rough for Super D. We have had quite a few seizures recently. Friday, a week and a half ago, was really rough. Daniel had seven seizures in a matter of a few hours.
The next day was quite calm. Sunday, however, was a rough day. Daniel had his first colonic – tonic, or Grand Maul, seizure.
He ended up getting sic this past weekend. It could have been the illness that brought the increase in seizures. Or maybe it was the changing weather here in Kansas. Or it could have simply been the up and down cycle we have seen from the beginning. Or it could have been…
There is the problem. We never know what brings on a bad day or week. Being nonverbal, Super D can not tell us when he feels bad or what is wrong. All we can do is guess at what is going on.
We know some triggers. Constipation is the first thing we assume. It is the only thing we can guarantee will cause an increase in seizures. Sickness always brings some on. Lack of sleep is another.
This time we are trying to be more scientific. The neurologist has order some blood work to test Daniel’s Depakote levels. Will it tell us anything? Doubtful. But, it is better than guessing and wondering.
My son, if you accept my words and store up my commands within you, turning your ear to wisdom and applying your heart to understanding — indeed, if you call out for insight and cry aloud for understanding, and if you look for it as for silver and search for it as for hidden treasure, then you will understand the fear of the Lord and find the knowledge of God. For the Lord gives wisdom; from his mouth come knowledge and understanding. – Proverbs 2:1-6
Life With Super D! 